Great news!

What a roller coaster of emotions this journey has been so far. Just two days ago we thought baby Eli had a rare and possibly complicated heart defect in addition to the Down syndrome. Today we had an echocardiogram done to confirm this diagnosis. Although he does have a heart defect, it is not Tetralogy of Fallot as previously suspected. Upon further inspection of his heart through ultrasound by the cardiologist, we finally received some good news. He has a small hole in his heart, called a Ventricular Septal Defect (VSD). This is different than the hole we thought he had previously, which is an Atrial Ventricular Septal Defect (AVSD). She did not see any signs of the AVSD. She did see a possible muscular VSD as well but that will close on its own. If future echocardiograms show signs of Tetralogy of Fallot it will be a very mild case and not as serious as we thought earlier in the week. But, as of today’s echo, she is pretty confident we are only dealing with VSD. Obviously we would prefer Eli to not have any heart defects but as heart defects go this is the most common and “routine” to treat. It will require open heart surgery between 1 and 4 months of age to patch the hole. He’ll most likely have a hospital stay of 2 weeks to recover. He may spend a few days in the NICU at birth but that will be more for the Down syndrome, not the heart defect.

So today we rejoice in this good news. The last two days were filled with despair. Today is filled with optimism. Once again I am confident that everything will be ok.

Thank you for all of your prayers. Today God proved to me that they really ARE working!

5 comments on “Great news!

  1. oh that’s amazing! What a lot of ups and downs. I am so bad that it isn’t as serious as thought. Love you guys so much! *HUGS*

  2. Mel, I had open heart surgery for the very same thing. VSD. I had a hole in my left ventrical valve. They didn’t find it until I was 5 years old. I had the surgery back in 1972 and it went just fine. He will be just fine honey. This type of surgery today is much better than it was way back then. Glad to hear the good news. Hang in there.

  3. My wonderful Melanie and Chuck. Wow! This is a rollercoaster. I talked to your mom about the first appointment and hadn’t heard anything about the second appointment. I am so grateful and feel blessed for all of you. One small item, I know that you (and me as well) vascillate back and forth with faith in the Holy Spirit and His plans for you. I do believe that the message here is to have continued faith throughout the process that the Holy Spirit is walking beside you and giving both of you strength to endure this. While it is a bumpy road, it will smooth itself out–your friend’s comment about her surgery at 5 is a perfect example. It’s wonderful that there are specialists out there who can further evaluate the situation and bring clarify and hope to you and others. When Eli finally arrives into this world, we will all rejoice and give praise to God for his blessing. I love you all so very much.

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