Prayers and good thoughts please!

Today I come to you asking for prayers. Eli had his cardiology appointment today. At less than two weeks old they already see signs of heart failure. That sounds somewhat scarier than it actually is but it does mean his heart is working a lot harder than it should be. Especially when he eats. His cardiologist, Dr. Vernon, likened it to running a full sprint and trying to drink water at the same time. But, our little fighter gets through each feeding like a champ! Today she noticed his breathing was fast and deep. To buy us more time before open heart surgery, she has put him on Lasix. That should help keep the fluid off his lungs and help his heart to not have to work as hard. She has also increased his caloric intake by having us add extra formula to his feedings (both breast milk and formula feeds). After his second post birth echocardiogram, his VSD (hole in his heart) has shown to be “quite large”. Dr. Vernon suspects he also has a small ASD (hole in a different part of the heart) but it can’t be seen by the echo. She believes it is so small that it will only require a stitch to repair.

Having him go on medicine so soon has kind of knocked the wind out of our sails. We thought he was doing so good! On one hand, I’m happy he’ll get some relief and hopefully not have to work so hard to eat and breathe. On the other hand, once meds are started surgery becomes more imminent. I know he has to have the open heart surgery. I know he will be better after surgery. But I am scared to death to hand my precious baby boy over to strangers to cut open his chest and repair the main organ of life. I trust in the Lord. I know the surgeons that will handle our son’s surgery will be guided by His hands. But it still terrifies me. It once again seems like one step forward, two steps back.

So today, I ask for your prayers for sweet Eli. If you don’t pray, please send out a good thought on his behalf. Eli could use all the positive energy we can muster!

A former co-worker, now friend, offered to take newborn pictures of our sweet boy as a gift to us. Here’s a few that she took of our cute pumpkin:

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Can you stand the cuteness?!?

Thank you friends, family, and those of you who have embraced our family from afar. This journey is made a little easier because we know Eli has all of you in his corner.

xoxo Melanie

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12 comments on “Prayers and good thoughts please!

  1. Those photos are wayyyyyy too cute to stand. Our household will all pray for Eli. He’s a little angel. It is so scary to think of surgery on such a small guy, but I suppose newborn surgeries happen more often than I’d like to think. He will be strong!! He will have lots of prayers to back him up.

  2. My dear sweet Melanie, your heart is big enough for both of you. May God bless you with the presence of the holy spirit to calm and soothe you in a way that you find incompressible. I love you girl and will pray for Eli, and all those who are close and love him.

  3. Eli has many prayers from us. The doctors and technology available now are amazing. Nick had heart surgery at childrens 4 years ago and the whole process is amazing. We will send many prayers that he can get stronger every day.

  4. Many prayers for Eli, his precious heart and all of you. I think that last photo is one of the most beautiful baby photos I’ve ever seen! πŸ™‚

  5. I WILL PRAY EVERY NIGHT FOR LITTLE ELI. MAY GOD PLACE HIS HEALING HAND ON LITTLE ELI TO KEEP HIM SAFE WHILE HE RECOVERS. MAY GOD PUT HIS LOVING ARMS AROUND LITTLE ELI’S FAMILY TO COMFORT THEM WITH HIS LOVE.

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