Look who’s 10 months old already!
I seriously cannot believe it! I guess time flies when you’re having fun – and, right now, we are having A LOT of fun. I hate to say it, but it’s almost like the calm before the storm. Eli must know he’ll be laid up for a few weeks after skull surgery – he’s trying to get everything “accomplished” by then. It’s almost like he has an internal list and he’s checking things off of it.
Sit up. ✅Check.
Eat finger foods. ✅Check.
Drink from a cup. ✅Check.
Associate words with people. ✅Check.
I guess he doesn’t want to fall too far behind. He knows how hard playing “catch up” is. Both of his therapists (PT and ST) call him a rock star and are impressed that he’s on target with “typical” kids his age. Given the obstacles he’s had to overcome, he truly amazes me. I feel guilty for ever doubting, or questioning, his ability. I guess he gets the last laugh!
Eli accomplished two major milestones over the last couple of weeks. First of all, he mastered the unsupported sit.
He has thoroughly enjoyed seeing the world from a whole new point of view.
Then, two days ago, while his new speech therapist was here, he crawled! He went commando style (on his belly using his legs to inch forward) after a piece of paper of all things. Who knew that’s what it would take! His determination was fierce. I was in awe. Next we will work on hands and knees crawling but I’m in no hurry. I appreciate each milestone he hits, when he hits it.
I was chatting with a mom who is new to this journey (she found out her son had Down syndrome at birth six weeks ago). I told her that one of the wonderful things about Down syndrome is that our babies stay babies just a little bit longer. I appreciate every little thing Eli does instead of just the major milestones. The other day he mimicked his daddy by raising his eyebrows back at him. Our claps and cheers would’ve suggested he did something much more impressive – but to us, it was the most amazing feat ever. We celebrate everything – so much so Cody now claps and cheers each time Eli takes a bite of food or picks up a toy. I guess mommy and daddy aren’t the only ones ridiculously proud of the youngest member of our family! Have I mentioned what an awesome big brother Cody has become?!
I hesitate to “brag” about some of Eli’s accomplishments out of fear of hurting another parent’s feelings. It’s hard when you hear about a child accomplishing something your child has yet to do. You start to feel a tad jealous or inadequate as a parent or fearful you aren’t doing enough to help your child succeed. We’ve all been there. We’ve all thought it. None of it is true but they are rough feelings to process. Being the parent to a child with special needs takes extra time and energy. I never thought I’d have to spend 2+ hours a week with a therapist teaching my child how to sit, crawl, speak, and eat. I was enough for Cody, but Eli requires more focus. That can be daunting at times. It has been overwhelming some days. But, the look of satisfaction on Eli’s face, and the pride I felt swell up in my heart, makes every single second worth it.
I continue to be inspired, in awe, and so very proud of both of my sons. We are truly blessed.
Eli had his follow up EEG today. His neurologist said everything looked perfect. All brain activity is normal. Woo hoo! Praise the good Lord. He will be off all medication in two weeks. There is no plans for a return visit to the neurology department unless the seizures return. Infantile Spasms can re-appear but we will remain hopeful that the seizures are a thing of the past forever…Soon to just be a distant memory. Eli is especially happy not to have to partake in any more EEG’s. He is not a fan.
I am so thankful that this whole process was relatively easy compared to some of the horror stories I’ve heard about. Infantile Spasms are very hard to treat sometimes. We are lucky that we caught them super early, treated aggressively right away, and got the whole thing under control within 3 weeks. I give thanks to the doctors who supported us throughout this process, most notably, Eli’s pediatrician Dr. Partridge. She took me serious from the get go. I am forever grateful to have such an amazing professional support system in Eli’s corner. Go team Eli!!!
It is awesome to see him reaching so many milestones now. He rolls over from back to front and from front to back. He can sit up unassisted for a couple of seconds. He reaches up when he wants to be held. He can sit in a high chair, a Bumbo, and an activity jumper. He may be a little behind at reaching some milestones but he is catching up at record pace! He is a determined baby that is for sure. Eli also had his first taste of rice cereal on Mother’s Day. He definitely seems to enjoy it!
Next we’ll try fun stuff like applesauce, bananas, and squash (those were Cody’s favorites)! I’m excited to have my baby back!!!
Thank you all for prayers, love, and support. This road would be a lot harder to travel without so many of you routing us on! I am so, so, so proud of our boy for getting through another challenge. He inspires us daily. As always, we are truly blessed.