The birth story of Eli Michael

What a year 2012 was. I learned so much about myself as a person. I changed in many ways over the course of the year. This was the year that I finally learned to live life. To fully embrace the blessings God gives us. Looking back on the year I cannot fathom how far we’ve come. The scared, confused parents we were in May are now strong, confident parents in December. Where our hearts were once broken, they are now overflowing with more love than we ever thought we could handle. When once we felt betrayed by God, we now stand firm in our trust for Him.

Although it seems like a lifetime ago, I thought the end of the year would be a good time to share Eli’s birth story. It’s time to close that chapter in our book of life. It makes me sad to read it now but I promised to be honest and that is what I am. Is it the amazingly beautiful birth story you may have read on other blogs about mamas who gave birth to their baby with Down syndrome (Kelle Hampton comes to mind here)? No. Is it a true reflection of my feelings at the time? Yes. Is it a measure of how far I’ve come on my journey to acceptance? Most definitely.

OCTOBER 25, 2012
The birth story of Eli Michael

We woke up early from a restless night of sleep. Our check in time at the hospital was 7am. We live 30 minutes to an hour away (depending on traffic). We left at 615am, not really accounting for the morning rush hour. Who’s late to their own scheduled c-section?! We were. We called the hospital in a panic. The gal who answered said not to worry – as long as we were there a half hour prior to our scheduled surgery time (9am) we’d be fine. Oh, ok. We arrived at 730am and checked in at the reception desk. We met my mom, Chuck’s mom, and my best friend, Alicia, at the hospital. Cody was still in his pajamas. I thought I’d have time to change him into his “I’m the big brother!” tee shirt but the nurse called us back right away. She seemed annoyed that we were “running behind schedule”. Uh oh. This was not off to a good start. We hurriedly kissed Cody goodbye and I started to freak out a bit. I didn’t want our last moments as a family of 3 to feel rushed and unimportant! Thankfully, Nurse Leslie said my family could come back once we finished up paperwork and I got all settled in. Phew. I asked about my mom being in the room, along with Chuck, for the surgery. Leslie said it was up to the anesthesiologist but that most of them say no. That is not what I wanted to hear. When Cody was born, it was so nice having her in the room with us – especially after he was born as I gave Chuck strict instructions not to leave his side. It was nice having my mom there to keep me informed as to what was going on since it was hard to see. I said a silent prayer that God would send us an understanding anesthesiologist. Prayer answered! We were greeted by Dr. Levin who gladly agreed to have an extra person in the room – in fact, he told us, he’d “sell tickets and put up bleachers” if he could as he didn’t care how many people were in the room – as long as the patient (me!) was happy. What a relief! Saying goodbye to Cody and taking our last picture as the Harrington 3 was so unbelievably hard for me. I was overcome with emotion. Fear and worry were most prevalent. What if something happened to me during surgery? Would he resent us for bringing a baby into our family? It’s hard to admit, but I was just so sad – and scared. After five months of worry, fear, anger, and then acceptance – it was time to meet our son. What if everything I feared was true? I was visibly shaking. I kissed Cody goodbye and prayed that God would keep watch over all of us.

Nurse Leslie told us it was time to go to the OR. If you haven’t had a c-section before, you wouldn’t understand the awkward feeling of walking yourself into the operating room. You climb up on the table and wait for the spinal block. After that kicks in, you aren’t walking anywhere. The first time I had a spinal block I told people it must be what a drug user feels when getting “high”. A warm sensation rushes over your body and then everything is numb. Thank goodness for the anesthesiologist. His job was to watch over me. He was so patient. I kept feeling like I couldn’t get a deep breath. He kept telling me my oxygen levels were perfect. I felt panicked (probably had nothing to do with oxygen). He asked if extra oxygen would make me feel better. I told him it would – and it did. After about thirty minutes of a little tugging (that’s what it felt like to me anyways), Dr. Lawler (my amazingly wonderful OB) told us it was almost time to meet our son. Wow. Here we were. It was time. I couldn’t stop thinking about what he’d look like. And then, Eli Michael was pulled from my belly – the nice warm place he’d been for nine months. The place where he was protected from everything the world could throw at him. The place where he stayed while my unwarranted fears continued to plague my mind. As Dr. Lawler held him up to us, the first thing I noticed was he looked just like Cody did – and then I realized he wasn’t crying! The NICU team was on standby and quickly rushed him to the exam table. I could see them doing things I hadn’t seen them do to Cody. They put oxygen on him. He still wasn’t crying. I asked my mom what was going on? What’s wrong with him?! I also, sad to admit now, asked if he looked like he has Down syndrome. I kept asking her if “you could tell”. Her reply was always, “he’s beautiful”. The NICU nurse came over to tell me he was having difficulty breathing so they would have to take him into the NICU. Although it was only minutes, it felt like hours before they showed me my son, very briefly, before taking him away. Wait! I wanted to scream. I was overcome with fear. But this fear was different than before. I never invisioned this happening. All I wanted was that moment where they put Eli on my chest and I whispered to him that I’m his mama and will love him forever. But instead I caught a quick glimpse of him as they were rushing him away so they could help him breathe. Chuck never left Eli’s side. Where I was left wondering what was happening, Chuck was living and experiencing it first hand. That could not have been fun. He saw our sweet son in a battle that must have been so scary to witness. He gave me updates via text once I was transferred to the recovery room. I kept asking for a picture but he didn’t send one. Now I know it’s because he was hooked up to a CPAP machine (a breathing mask that forces air in the lungs). The CPAP is a much less invasive way of getting air into the lungs versus a breathing tube (ventilator) but I can only imagine how terrifying it was for a daddy to watch his newborn struggle to breathe then end up with a huge mask on his face. It turns out, he had a pneumothorax, basically a small leak from his lung. Thankfully he was only on the CPAP for an hour. He eventually was just being treated with a nose canula (prongs up the nose). I finally received a picture of my sweet baby. Although he was hooked up to a lot of monitors, etc. I could still see his cuteness shinning through. I could also see the Down syndrome. I kept pointing out the features. His eyes were slanted. His ears were crooked. Everyone else got to meet my son before me. One by one visiting family and friends would come into my room and tell me how adorable he was. I felt this need to point out his features. Maybe it was my preemptive way of protecting myself from hearing someone else point them out. Bless everyone, they would respond in the kindest ways – “He looks just like Cody!”, “He’s so beautiful!”, “He’s absolutely perfect”. I thought they were just sugar coating it. I just wanted to see him – in person! It wasn’t fair that everyone else was meeting my boy before me! The nurses were trying to figure out a way to get me to the NICU room. If I could’ve walked, I would have. I couldn’t even go in a wheelchair. The only option was a gurney as the portable bed I was in would not fit into the small “room” Eli was in. Unfortunately, all gurneys were being used so I had to wait. And wait. And wait. It was a very busy day in the labor and delivery unit that day. I kept hearing babies crying. I felt sorry for myself. I never envisioned being separated for so long from my son. He was a part of me for nine months and now I had to wait to meet him. Finally a gurney was available. I was wheeled to the NICU and rolled up next to his “crib” (although to me it looked like a table with a warmer and a bunch of wires and tubes connecting my baby to it). I reached for him but couldn’t touch him. He was too far. His nurse said I could hold him so they lifted him to me and put him in my arms. I got to look at him and smell him and feel him. I told him I was his mama and that I’d love him forever. Finally. Chuck went and got Cody and we were all able to be together. Not how I had once pictured but it didn’t matter – we were together. Unfortunately, I couldn’t stay there and he couldn’t come with me. I promised him I’d be back as soon as I could. And I was. Later that evening, Chuck wheeled me into the room to see him. I looked closely for every single feature the books on Down syndrome said he could have. I then looked at his cute button nose and his beautiful lips and his tiny feet. I held his hand. He grasped my finger. It was like he was pleading with me to not let go. To accept him for everything he was. I whispered to him that everything was going to be ok and then I cried. I cried because I finally felt relief. I finally let go of the shallow fears I had about what he’d look like and embraced him for his uniqueness and thanked the Lord for the beautiful boy He gave to us. Our son. After that, I no longer saw Down syndrome when I looked at him. I saw Eli Michael. I constantly stared into his beautiful angel eyes and wondered how something so perfect could have been chosen for us.
We stayed in the NICU for 7 days. Eli proved his strength and tenacity many times over during that week. The nurses were constantly impressed by his strength. Mommy wasn’t so strong. It was so hard seeing him hooked up to so many monitors. Each setback was like a kick in the gut. It was exhausting to live in a hospital and heartbreaking to be away from Cody (although he had a great time with Nana and didn’t seem to miss us at all!). But that week taught us to celebrate every accomplishment, big or small. It taught us to never take what we have for granted. It gave us the opportunity to truly bond with Eli without the other distractions in life. It gave me time to fully embrace our new normal. Life was going to be a little more challenging but in one week we became fighters. We left the hospital ready to take on the world. Ready to protect and cherish the most amazing gift God has entrusted us with.

Two months later, I never see Down syndrome when I look at Eli – I see the perfectness that completed our family. He’s the apple of his daddy’s eye. The best gift Cody received for Christmas (his words!). To me, he’s my heart and my soul. He has given me life. He has taught me to truly live in the moment, every moment. I thank God every morning for each minute I am blessed with my boys. I believe He took parts of Heaven when creating our children. He blessed us with a shinning star (Cody) and a perfect angel (Eli). Today, I ring in the New Year with new faith, new peace, and new hope.

Cheers,
Melanie

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Acceptance

May 8, 2012 at 1:15pm our world changed forever. We got the call from the genetic counselor that we had been dreading. The baby I have been carrying for 15 weeks, is not healthy. He/she has Down Syndrome. What?! How can this be? I’ve done everything right. I don’t drink, smoke, take medicine, eat foods I’m not supposed to. Why me? Why us? Cause I’m old? But I’m not old! I’m only 36. What will this do to our family? I’ve gotten mad, sad, anxious, confused. Will I be able to love this baby? What does their future hold? Bullying, dependence, frustration? What does Cody’s future hold? Constant defending? Other peoples intolerance? Jealousy? What does our future hold??? I can’t even go there right now. Everyone assures us that they’ll love the baby regardless and that they’ll always be there to support us. Will they? Will we? Can we? I have felt thoughts that I never thought I could feel about my unborn baby. Those thoughts make me angry, sad, and feel very un-mommy like. I’ve prayed for forgiveness of those feelings. Can I handle this? Can Chuck? Will our marriage survive? Is it worth risking? Right now, I don’t know the answer to those questions. I pray for clarity, for love, and for acceptance. I pray for peace. I pray that everything will just be alright.

I wrote that journal entry a few days after we found out that our baby has Down syndrome. It makes me sad to read it now. I felt so out of control. So desperately trying to understand what was happening. I’d go to sleep and wake up not remembering if it was a dream or real. I would pray it was a dream then remember it was not. We cried a lot. We stopped praying. We felt betrayed by God. We worried and worried and worried. We grieved for the child we thought we were having and didn’t know if we could ever come to terms with the child we were given.

After three long, insufferably challenging weeks my eyes were finally opened when my OB doctor (of all people!) quoted the bible during an appointment. Jeremiah 1:5 “Before I formed thee in the belly I knew thee;…”. All of a sudden, it all made sense to me. We were chosen by God to be this child’s parents. He knows we are capable of loving this child unconditionally. He picked us for him and him for us. I walked out of that appointment knowing everything would be ok. There was a feeling of calmness and acceptance that was such a new, welcomed feeling for me. Chuck still wasn’t there. He was still depressed. I feared he may never get to a point of acceptance like me. What if he never did?

A few days later we named our son. Eli Michael. There is a lot of meaning to his name that I won’t go into right now. But now our baby, our son, had a name. He was real. No longer just a scary diagnosis to us. He became ours.

We spent the following weekend on the Washington coast. If there’s a wonderful place to reflect and gain insight, it’s the beach. We were surrounded by peace. We were filled with love. As we took pictures of the three of us on the beach I had an overwhelming feeling that our family was going to be what it was meant to be. The four of us. Me, Chuck, Cody, and Eli. A family that was chosen. I took a picture of Cody playing on the beach. When I looked at the image on my camera I could not explain what I saw. Instead of one shadow standing with Cody, there were two. I just knew it was Eli. I just knew we’d be ok. That weekend was the best weekend of our lives (so far). We both accepted the child we were given. Not only accepted, but embraced.

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